This is our little Sadie. She has more strength and courage than I think anyone on earth and I know God has His light upon her. If she doesn’t become a heart surgeon when she grows up, as she stated below, she already has become a heart doctor by touching everyone whom prays for her, supports her art gallery, or share her story.

“Today is Saturday the 27th of June and Sadie is in the ICU at Shands, she’s been taken off some of her heavier medications and had some reduced down so they could start her on milrinone. They did have to sedate her to place her PICC line. Previously Sadie was able to tolerate having lines placed easily but she’s had so many done over the last couple of months that she carries some fear and trauma from them.

Sadie is starting to ask the hard hitting questions. “Momma why did God make me like this? Momma why do I have to go through this? Momma I miss being normal” And it hits hard every single time. I’ve seen a saying lately, and I firmly believe that God puts them in front of me when I need them, but this one is “I asked God why he led me through so much darkness and he responded “So you know the way out when I send you back in for others”.

One of the things Sadie has continued to say to all of her providers is “I want to be just like you when I grow up. I want to help kids like me because I know what they’re feeling”.


Harper and Sadie

To know these two girls you would always know it’s Harper and Sadie. You would never see one without the other. They are closer than two peas in a pod.

As we continue to ask for your prayers please also keep Harper in your thoughts. I wanted to share these photos so you can see their love and happiness.

Face Paint

One day Sadie asked if she could face paint me. I said no so she asked if she could face paint herself. I thought she was just going to paint a butterfly or something small. About ten minutes I went to check on her and this photo captured that moment. I made her stop and she said “gram, you crushed my dreams”. Hind site is hard and now I wished I would have let her finish..

Wonderful Big Sister – Harper

When asked how is big sister, Harper, doing Rose wrote:

“Harper has been absolutely amazing, she’s supportive and loving and we’ve been having her have a lot of extra play dates with her friends and our church loves on her a lot- we’re trying to keep life normal for her and also adapt to the new normal. She’s an amazing big sister.”

These two are the perfect example of what love is all about.